Dear COPE-PD Community,
As we are coming upon Thanksgiving we would like to express our heartfelt thanks for your participation in this study and the work that you do for people with neurologic illness in your communities. We appreciate the opportunity to work with you and learn from you, and greatly appreciate everyone’s involvement and support in sending referrals. We are excited to share with you updates on study progress and additional news and events.
Patients can now enroll for the study directly through this study website by completing ourJoin COPE-PD Form
Judy Long is an outpatient palliative care chaplain and educator with UCSF Division of Palliative Medicine. She served as chaplain in a grant-funded neuropalliative clinic for people living with Parkinson’s, related disorders, and Alzheimer’s Disease. Judy developed and teaches courses in sustainable caregiving for carepartners of people living with neurologic illness, emotional resiliency for people living with neurologic illness, and clinician resiliency for the providers who serve them. On a personal note, she is also the caregiver of her husband who lives with early stage Alzheimer’s Disease.”
Please feel free to check out the video and article below and share with your patients and families.
- Helplessness & Hope in Parkinson's with Judy Long
- How Can Caregivers Support Patients Without Suffering Themselves? An Interview with Judy Long
We will be offering additional educational sessions in the coming year including serious illness communication trainings, loneliness and social isolation, lifestyle and diet, diversity, and trauma-informed care. Stay tuned!
Thank you!
The COPE-PD Team
Dear COPE-PD Community,
We hope that you are having an amazing Summer! We are thrilled to continue to work with all if you and greatly appreciate everyone's involvement and support in making this study a success! We are excited to share with you updates on study progress and additional news and events.
Amina Alio (Ph.D)
Dr. Alio has extensive experience in community-based participatory research, qualitative, and quantitative methods, and evaluation design. Her research areas include racial/ethnic health disparities and global health.
We are rolling out a series of optional communication workshops that you can attend via Zoom. We plan to host four of these sessions over the next year to give you the opportunity to practice and get feedback on challenging conversations (e.g., discussing prognosis, initiating hospice).
Our first session is coming up on Wednesday 8/14 at 6pm ET.
We are launching a brand-new newsletter for patients and families for us to stay connected, share their testimonials about the study, and to join in on their success stories. Stay tuned!
Thank you!
The COPE-PD Team
For more study information, or to find out if you and your care partner are eligible to participate, please contact our team.