COPE-PD (Community Outreach for Palliative Engagement Parkinson's Disease) is aimed at improving the standards of care and quality of life for individuals living with Parkinson's Disease (PD) or related conditions, as well as their families. Our mission is to achieve this goal through two key approaches:
We are dedicated to identifying and addressing the most crucial needs of patients and their families. By understanding your experiences, needs, and challenges, we can drive positive change in the field of palliative care.
Our commitment extends to offering support not only to patients but also to community neurologists. We believe that by empowering neurologists with valuable insights and resources, we can enhance the care provided to PD patients.
As a valued participant, your commitment to the COPE-PD study involves:
Your experiences and insights are invaluable to the success of this research. By participating, you become an essential contributor to understanding what it's like to live with PD or care for someone who has PD. In addition to your contribution to the study, we offer you various benefits and additional support:
For Patients, Carepartners, and Community Clinicians
Once your clinician as been trained in palliative care and you have transitioned into the Intervention phase with your respective Research Coordinator, you will be given a passcode to enter the Intervention page to access extra resources.
